Brilliant – simply brilliant!

See the person not the dementia

1.Don’t say, ‘but don’t look or sound like you have dementia’
2.Don’t tell us we are wrong
3.Don’t argue with us
4.Don’t say ‘remember when…’
5.Don’t call us ‘sufferers’ or ‘victims’
6.Don’t say we are ‘demented’, ‘demented sufferers’, ‘fading away’, ‘disappearing’, have a ‘dementing illness’, an ‘empty shell’, or are ‘not all there’
7.Don’t say you are ‘living with dementia’ unless you are diagnosed with dementia
8.Don’t remind us of the death of a loved one or pet
9.Don’t blame the person with dementia for the changes in behaviour or personality
10.Don’t assume we do not understand you
11.We have a form or type of dementia, not an ‘affliction’
12. Don’t refer to us as ‘aggressive’, ‘wanderers’, ‘poor feeders’, ‘wetters’, ‘non-communicators’, ‘vocalisers’ or as ‘obstructive’ – we are still human beings
13.Don’t assume we can’t feel pain just because we may not be able to tell you about it

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The best ideas! Can’t wait for June 1st!

The Long and Winding Road...

Where there’s hope, there’s life. –Norman McNamara

Many of us have had a mentor at one time or another during our lives. They guide us, offer words of wisdom, and provide feedback on our ideas or problems. A teacher may serve as a student’s mentor, or someone in a more senior position at work may mentor a less experienced associate. The role might be formal or informal. There are no set rules, but generally the relationship involves trust, counsel, and mutual respect.

No Longer Alone

Imagine receiving a diagnosis of Alzheimer’s or another form of dementia. Few things would be as frightening; few things would elicit such a strong sense of being alone. But what if, upon diagnosis, you were introduced to a dementia mentor? How might that change things?

Well, Gary LeBlanc, along with Norman McNamara (UK), Harry Urban (US), Barry Pankhurst (Indonesia), Chris Roberts (Wales), Richard Taylor

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News from Devon

Purple Angel emblem for dementia awareness is flying!

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